Welcome to the Foundation Fighting Blindness Clinical Consortium public website
Consortium Mission Statement
Foundation Fighting Blindness (FFB) seeks to build a Consortium for the purpose of conducting clinical studies in patients with rare inherited retinal disorders (IRDs). The goal of FFB is to accelerate the development of treatments for IRDs. To accomplish this, FFB plans to build centers of excellence to participate in sponsored clinical studies. Investigators from participating clinical centers will collaborate on ideas for hypotheses, study designs, analysis plans, and publications. Data from the completed trials will be archived in an open central repository to stimulate further hypothesis generation and innovation.
Governance Document
FFB Clinical Consortium Governance Document
Information for New Consortium Clinical Centers
We are not currently accepting new applications. Any potential new sites interested in future opportunities please email: ffb@jaeb.org.
Collaboration Guidelines
Guidance for Consortium collaboration with partners from industry, government, and other nonprofits.
FFB Clinical Consortium Collaboration Guidelines - Sponsored Trials
FFB Clinical Consortium Collaboration Guidelines - Investigator-Initiated Studies
Study Ideas
Forms for study ideas can be found below. Please submit idea forms to ffb@jaeb.org.
Protocol Idea Form - Submit idea for a new FFB Clinical Consortium study
Ancillary Study Idea Form – Submit idea for adding an ancillary objective to an existing Consortium study
Independent Ancillary Study Request Form – Request approval to conduct independent ancillary study including participants of existing Consortium study.
Analysis, Manuscript, or Presentation Ideas
Forms for analysis, manuscript, or presentation ideas can be found below. Please submit forms to ffb@jaeb.org.
Analysis Idea Form - Submit idea for a new manuscript or presentation, in collaboration with the Consortium
Data Requests
Forms for data requests can be found below. Please submit forms to ffb@jaeb.org.
Secondary Research Request Form – Request access to a public dataset or early access dataset
Data Use Request Form – Request to publish or present Consortium data (sites, reading centers already have access to), without scientific collaboration with the Consortium
Aggregate Data Request Form - Access to tabulated or summary data, without scientific collaboration with the Consortium